Location: Home based with meetings in London.
Jeans for Genes® is the UK's largest fund-raising campaign to benefit those affected by rare genetic disorders. Genetic disorders affect approximately 1 in every 25 births. Many conditions affect fewer than 10 in a million births and some are so rare that they don't yet have a name. This is a campaign that has raised over £45 million to date, the profit of which has been distributed as grants to some of the smallest specialist charities.
A new charity, Jeans for Genes Campaign, has recently been established to manage the brand and any future partner relationships, and to increase reach and action beyond the traditional one day campaign in September. The charity is now seeking an independent Chair to lead a new board of trustees (aiming for five trustees initially) and to support the CEO to ensure good governance and help plan and fulfil the strategic aims of the organisation.
A maximum of six trustee meetings per year is anticipated, although more may be required in the first year. Trustees will also be invited to attend regular Management Board meetings, working with the CEO and internal team and major partner charities to oversee the campaign plans on a regular basis if they wish to be involved.
The ideal candidate will have previously held an executive or non-executive board position in a charitable or commercial entity and will have previous experience of chairing a board or senior management team. They will also have knowledge of UK charity governance requirements and be financially competent to ensure effective scrutiny at board level.
Desirable additional experience and skills would be substantial experience in a charity leadership role, experience of building and leading teams with diverse skills, and a knowledge of modern marketing and fundraising methods.
Note we will be assessing applications as soon as they come in, so please apply early to register interest
Should you require an informal conversation prior to applying to this role, please contact Alexandra Kurn