Head of Information and Support (maternity cover)
Target Ovarian Cancer is a dynamic and fast moving charity dedicated to achieving a long and good life for every woman with ovarian cancer. Our work is distinctive because we tackle the three biggest barriers to progress – late diagnosis, the lack of new treatments, and the isolation so often felt by women.
90 percent of all cancer patients have unmet support needs for emotional wellbeing and mental health issues. Among women with ovarian cancer 80 per cent say they have experienced mental ill health since diagnosis, yet just a third say anyone has discussed their mental wellbeing with them, 69 per cent experience a loss of self-esteem and 73 per cent report difficulties with intimacy. The biggest issues for women following treatment are coping with fear of recurrence and death, feeling isolated and lacking support.
In 2017 Target Ovarian Cancer launched a new strategy to transform support and improve quality of life for women with ovarian cancer; ensuring every woman receives the right support at the right time, in the way that is right for her. Our ambition is that everyone affected by ovarian cancer is better supported. From the shock of diagnosis to questions about treatment; from feeling isolated and anxious about recurrence to getting back to everyday life; we are the only ovarian cancer charity offering care and support to women and their families in all four UK nations.
The Head of Information and Support’s role is to lead on all our work providing support and information to women affected by ovarian cancer, wherever they are in the UK.
- Extend reach to women with ovarian cancer
Each year over 7,000 women in the UK receive a diagnosis of ovarian cancer. The Head of Information and Support will be responsible for extending our reach to all women living with ovarian cancer so they can access our services, meeting annual key performance indicators for events, publications and web and database targets. Relationships with health professionals, especially Clinical Nurse Specialists will be key, as well as regular promotion of our services within our own communities.
- Oversee existing supportive services for women with ovarian cancer
Over the past five years we’ve extended the types of information and support we offer to women with ovarian cancer. We currently offer:
- A nurse-led Support Line.
- A series of support and information events across the UK.
- A private Facebook group offering a safe community for peer support for women with ovarian cancer.
- Five key guides to support women with ovarian cancer, at whatever their stage of diagnosis plus additional website information and factsheets in both printed and digital formats.
The Head of Information and Support will be responsible for ensuring these services are delivered and evaluated effectively, adapting them as required to ensure they have maximum impact.
This involves managing a team of four people including two full time office based staff members, and two part time nurse advisers who work from home, ensuring they are supported to meet their objectives and KPIs, and involved in the planning of future work.
- Development and implementation of new services
Following the publication of Target Ovarian Cancer’s new business plan, work with colleagues to deliver the objectives as these relate to supportive services. This includes helping develop proposals and project plans for new initiatives as well as extending and launching new services as funding becomes available.
- Supporting professionals to support women with ovarian cancer
The Head of Information and Support will lead on our work with Clinical Nurse Specialists, to ensure they have the best opportunity to support women living with the disease. This will include responsibility for running the ‘CNS Hub’, an online portal for gynae cancer nurses, ensuring it is well used and rated.
- Impact evaluation
The Head of Information and Support will lead on the ongoing impact evaluation of our services, implementing new data collection systems including a survey and telephone interviews, and producing an annual report on the impact of Target Ovarian Cancer’s supportive services.
- Senior Management Team
As a member of the Senior Management Team, the Head of Information and Support will be required to
- Provide regular updates to the SMT and Board of Trustees on the work of the team.
- Set and control budgets in line with the business plan.
- Contribute to the overall implementation of the business plan (2017-20).
- Lead on developing information for current and potential funders as required.
- Provide organisational lead on Information Standard accreditation.
- Organisational representation
The Head of Information and Support will provide leadership on matters relating to information and support. They will be a credible spokesperson on such matters and represent Target Ovarian Cancer where necessary at meetings and in the media. They will also where required lead on contributions to external consultations.
They will develop and communicate an excellent understanding of the ovarian cancer patient pathway and the challenges women face living with the disease.
- To take an active role as a senior manager of the charity.
- To maintain confidentiality.
- To operate within the equal opportunities framework data protection, information standard and health and safety requirements of the organisation at all times.
- To carry out necessary administrative functions.
- To be flexible with regard to working hours when requested.
- To attend internal and external meetings as required.
- To perform other duties as assigned, including travel around the UK.